Thursday, January 31, 2013

Just a little Update.

Matthew had is 2nd Remicade treatment on Jan. 18th. I know I am a little behind.  It went fairly well.  They needed to do another blood test to see if all the vaccines he got when he was a baby were still working.  With a lower immune system sometimes they stop working.  So when they put in the IV they took blood out of that first, 1 poke= happy Matthew(kind of).  He was really worked up and we had to hold him down, give him a break and then hold him down again.  When they were taking the blood he bled a lot.  Then through the whole treatment he was kind of bleeding back out of the port, which is normal I guess when they hit a really good vein.  He had some snacks, watched movies and played on the IPad again.  When they took out the IV he bled alot again.  She thought she had it stopped, put the band-aid on and left the room.  Matthew got up to get his shoes on and started bleeding all over.  I sat him down and gave him paper towels while I ran to get the nurse.  I hit the button but she was in another room.  She ran in and helped him hold pressure on it and finally got it to stop.  She said when he stood his blood pressure changed enough to make it bleed again.  I guess the vein they got this time was really good she said.

His blood test came back saying that all but his Hep B is working.  So She said once he is off the prednisone then he will have to get the 3 part shot series again.  I have not told him this because he is not going to be happy about it. :) 

Other then that everything is going great.  He is feeling better almost all the time.  He took his last prednisone yesterday, so hopefully his eating will slow down a little.  He is gaining weight and getting chubby cheeks!  He has a huge attitude right now, but that is most likely from the prednisone too.  So hopefully that will stop too!

On March 2, there is a Crohns and Colitis Foundation Conference in the cities.  It consists of a whole day learning about new things dealing with crohns and colitis. There is a bunch of different sessions we can attend.  Matthew's Doctor, Dr. Tung will be speaking there.  So we are hopefully going to be attending this year. 

And Don't forget!!! To swing byhttp://online.ccfa.org/site/TR/2013TakeStepsWalk/Chapter-MinnesotaDakotas?team_id=121443&pg=team&fr_id=3903 To sponsor Matthew in the Walk!!!  His goal is to hit $100 under his name so he can get a T-shirt!  He is at $65 right now!!!  We have also make some T-shirts for us to wear that day, if you would like one let me know!  They are $10.80 each!

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